A Special Day-Every Three Weeks

Myasthenia Gravis Symptoms
The Myasthenia Gravis Symptoms

A Special Day-Every Three Weeks

Today things are a little different for me. I will take it a little easier this morning, and I will make it a point to do only calm things. Travis will help me with my hair when I take my bath this morning, for my caregiver doesn’t come in until this afternoon.

After my bath, we will watch westerns from the 60’s and 70’s, like Wagon Train, Laramie, Dead or Alive, and my favorite, Gunsmoke. Shows that will not upset me. Usually, I watch the news, but I really get into the news and have my opinions about it. So today is a western day with Travis.

Renee, my Nurse

A text comes from my nurse and she will be here at about 4 pm, and that is the usual time. Renee is an extremely good nurse, who is very well-trained in what she is doing. Sometimes Renee talks about her family and her garden, so Travis and I both enjoy calmly visiting with her the four hours it takes for me to have my IVIG.

Renee comes to my house every three weeks to help me have my IVIG. When I first started them it was every four weeks. As I remained weaker, and the Myasthenia Gravis symptoms worsened, the neurologist increased the dosage and the frequency.

NURSE TAKING BLOOD PRESSURE
NURSE TAKING BLOOD PRESSURE

Renee takes my blood pressure and temperature every thirty minutes or so. More often, when we first start one. It is because I don’t have any immunities, and to lessen the force of the Myasthenia Gravis symptoms. This is a form of Muscular Dystrophy.

The IVIG Is Over

The IVIG is over and Renee has left, and everything went well. I am as tired as if I had worked all day, and I didn’t do anything but sit here and calmly watch TV and visit. Renee is tired, but she doesn’t show it, and she has to drive about fifty-five miles until she gets home. She is the closest nurse to me that is trained to do this.

Anyway, the IVIG is over and I will feel stronger in the morning when I wake at about 4 am. Tomorrow I have a doctor’s appointment in the afternoon, but I can work in the morning.

Description of IVIG

Quote from All Geek, “A health care professional to come to his or her home, as the treatment requires several hours of sitting while the IVIG is delivered, and medical personnel must be available to monitor the patient for signs of an allergic reaction or any other complications related to the treatment.”

Thank you for reading. Please Leave Me Your Comment!

6 thoughts on “A Special Day-Every Three Weeks”

  1. I had not heard about Myasthenia Gravis before coming across your site. I commend you on creating a site while experiencing the symptoms of Myasthenia Gravis. What does IVIG stand for? I am glad that you are able to have a chat with your nurse Renee while she administers the IVIG. All the best for your treatment. 

    1. Thank you, Fiona, for your questions! The IVIG is an in the vein administered infusion of immunoglobulin because I have no immunities. Myasthenia Gravis causes the body to attack itself and destroys your immunities, so every three weeks they try to build them up. Thank you, again, Janice😃

  2. Hi Renee. What a heart touching blog. I feel so bad at the moment,. Why? Because I hurt my finger when a sledge hammer hit it yesterday as I was trying to knock in a steel post. I work for myself and decided I’d better have the day off as the pain in my finger, and the bandage it’s rapped in, make it difficult to work. But that’s not why I feel bad, it’s because my little issue fades into significance against yours. I think everyone needs to read your blog and have a reality check. Thank you for opening my mind up to just how silly I’ve been. I must admit I don’t know much about Myasthenia Gravis, however I do understand the symptoms. My Uncle and Aunty both passed away years ago after suffering Motor Neurone disease and recently I found out my best mate has it. My thoughts are with you Janice. Jim

    1. Jim, Thank you, for a beautiful tribute to those you love who have passed away after suffering from Motor Neuron Disease, and for telling me it is a touching blog. Well, you shouldn’t feel bad because when a man hurts his finger he hurts all over! When my husband cut off the tip of his thumb, he passed out cold! It is a serious thing when you get hurt! Take care of yourself, and try to not get hurt! Thank you again, Janice😊

  3. Hello Janice.

    First off, let me say that you are a true warrior! It must be terribly frustrating to deal with Myathenia Gravis.

    I do not have any notion what this disease is about. But, the symptoms you’ve explained give me some idea.

    Having assisted my sister during the last phase of her husbands life, I am familiar with the variety of hospice nurses and assistants that came daily to their house to care for him, give him baths and overall check on his comfort levels. He had his favorites, of course, and his face would light up when he saw them. It was a difficult time for all of us, but those home caregivers helped us all, not just him.

    By the way, what is IVIG?

    Looking forward to your reply,

    Karen

    1. Karen, thank you so much for your comment and your kind words, they are gentle and welcome! I am not into hospice as I am still in the precious time given me by the IVIG’s which are ordered by my neurologist and I believe are a gift of the Lord for they truly prolong life. An IVIG is an infusion of immuniglobinns that strengthens my immunities. Myasthenia Gravis is a rare form of Muscular Dystrophy. I am sixty-eight years old and I am still able to do my WA work from my recliner or bed, so I will do fine as long as I have my precious family that takes care of me. Thank you again, Janice👌

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