A Special Day-Every Three Weeks

Myasthenia Gravis Symptoms
The Myasthenia Gravis Symptoms

A Special Day-Every Three Weeks

Today things are a little different for me. I will take it a little easier this morning, and I will make it a point to do only calm things. Travis will help me with my hair when I take my bath this morning, for my caregiver doesn’t come in until this afternoon.

After my bath, we will watch westerns from the 60’s and 70’s, like Wagon Train, Laramie, Dead or Alive, and my favorite, Gunsmoke. Shows that will not upset me. Usually, I watch the news, but I really get into the news and have my opinions about it. So today is a western day with Travis.

Renee, my Nurse

A text comes from my nurse and she will be here at about 4 pm, and that is the usual time. Renee is an extremely good nurse, who is very well-trained in what she is doing. Sometimes Renee talks about her family and her garden, so Travis and I both enjoy calmly visiting with her the four hours it takes for me to have my IVIG.

Renee comes to my house every three weeks to help me have my IVIG. When I first started them it was every four weeks. As I remained weaker, and the Myasthenia Gravis symptoms worsened, the neurologist increased the dosage and the frequency.

NURSE TAKING BLOOD PRESSURE
NURSE TAKING BLOOD PRESSURE

Renee takes my blood pressure and temperature every thirty minutes or so. More often, when we first start one. It is because I don’t have any immunities, and to lessen the force of the Myasthenia Gravis symptoms. This is a form of Muscular Dystrophy.

The IVIG Is Over

The IVIG is over and Renee has left, and everything went well. I am as tired as if I had worked all day, and I didn’t do anything but sit here and calmly watch TV and visit. Renee is tired, but she doesn’t show it, and she has to drive about fifty-five miles until she gets home. She is the closest nurse to me that is trained to do this.

Anyway, the IVIG is over and I will feel stronger in the morning when I wake at about 4 am. Tomorrow I have a doctor’s appointment in the afternoon, but I can work in the morning.

Description of IVIG

Quote from All Geek, “A health care professional to come to his or her home, as the treatment requires several hours of sitting while the IVIG is delivered, and medical personnel must be available to monitor the patient for signs of an allergic reaction or any other complications related to the treatment.”

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